Skip to main content

Posts

Relapse - a poem

The disease is back The one that blows my mind And stops me in my tracks The disease, weak at the knees, that takes my breath away. Don’t get me wrong: it’s been there all along. But we’d reached an understanding, or so I thought. That in return for thirty years of loss I’d be allowed a life of sorts. A charmed existence I’ve led these past 12 months. Sitting, miraculously upright, in a chair, at a desk for four hours a day. Typing thoughts, speaking words, changing the world. And touching grass, as the young people say, almost every day. Treading this blessed earth like I was back from the dead. Skin meeting sun. Foolishly imagining I’d won. By sheer bloody-minded refusal to lie low, I fancied I had had gathered enough strings of energy in my bow to prevail over the tides. But no. It turns out it was churning away in the depths of my cells, a rip tide of nerve signals, gathering force. And now the waves are upon me. Wave after wave of massive attack; the disease is back. The
Recent posts

The history of the Disabled People's Movement for equality and inclusion

Celebrating International Day of People with Disabilities 2022 I have to confess, this day brings mixed emotions for me.  The principle that disabled lives have equal value is enshrined in the UN Convention on the Rights of Persons with Disabilities and is celebrated every year on 3rd December.  More and more businesses join in the celebrations by inviting disabled speakers, turning on purple lights and renewing their pledge to disability inclusion. And that's a good thing. But I'm always a bit uncomfortable about how little awareness or recognition there is about the background to this day. The principle that disabled people should have equal opportunities to participate in society wasn't handed to us on a plate. It was fought for, and the fight was bitter. Having had the honour to meet, and work with, some of those leaders, and indeed victors, of the Disability Rights movement, I want to play my part in keeping their fight on the record. Since IDPWD falls in Disability Hi

Do No Harm lobby

This is the text of a speech I gave at a lobby of parliament organised by John McDonnell MP on 13.02.19 called Do No Harm . Campaigners told MPs how to reduce the appalling damage to disabled people's lives caused by social security cuts and reforms. Catherine Hale   A hostile environment for disabled people The Windrush scandal revealed how government policies can deliberately make life difficult for its citizens. The same hostile environment has been put in place for disabled people, through welfare reforms that have caused us such suffering and harm, and made us into objects of hostility and distrust. The hostility and suspicion was not accidental. As Mo Stewart, who can’t be here today, has demonstrated, its origins can be found in the writings of two scientists, Gordon Waddell and Mansell Aylward, who’ve advised insurance companies and governments on ways of cutting payouts to sick and disabled people.   Their body of work says that most chronic mental and

The future of assessments and social security for disabled people

This is a slightly edited version of notes for a presentation to the ESA roundtable meeting chaired by John McDonnell MP on 29th November 2018. The content is based on previous research work with Spartacus Network, independent research into ESA and the WRAG, research on Access to Work, as well as current research with the Chronic Illness Inclusion Project. The current benefits system was identified as the biggest source of social oppression faced by CIIP participants. We recently completed focus group on designing better social security for people with energy-limiting chronic illness. Introduction The first part of this presentation is four main principles for a new assessment framework. A set of tests that any new system must meet if it is to restore the Human Rights of disabled people. The second part covers points for further discussion. Highlighting areas of current debate and disagreement. Principles 1: Overturn the ideology behind the Hostile Environment, restore digni