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Publications

 

An introduction to energy limiting conditions: the emergence and evolution of a new impairment concept. 

    Hale, C., Bê, A., Ruddock, A. (under review with International Journal of Disability and Social Justice)

Making Employment Work for People with Long Term Conditions: evidence from the frontline.  

    Hale, C., Francis, K., Stacey, P. Astriid (2023)

Disbelief and Disregard: gendered experiences of healthcare for people with energy limiting conditions.  

    Evans, B., Allam, A., Hale, C., Bê Pereira, A., Rose, M., Ruddock, A. University of Liverpool (2023)

Removing Societal Barriers for People with Energy Limiting Conditions. 

    Hale, C. Disability Rights UK. (2021)

“A place where we could listen to each other and be heard”: enabling remote participation spaces for research and co-production Covid-19 and Co-production in health and social care research Vol 2.  

    Hale, C., Allam, A. Policy Press. (2021)

"I Already Have a Job": energy-limiting chronic illness, social inclusion, employment and social security.

    Hale, C., Benstead, S., Hardy, K., Ingold, J. Centre for Welfare Reform. (2021)

Remote Access as a Reasonable Adjustment 

    Hale, C., HEAR Network (2020)

Energy Impairment and Disability Inclusion 

    Hale, C., Benstead, S., Lyus, J., Odell, E., Ruddock, A. Centre for Welfare Reform. (2020)

Stories of our Lives: case studies on benefits and work with energy limiting chronic illness. 

    Hale, C. Centre for Welfare Reform. (2019)

Reclaiming Chronic Illness: an introduction to the Chronic Illness Inclusion Project 

    Hale, C. Centre for Welfare Reform. (2018)

Barriers to Work: a survey of Deaf and Disabled People's Experiences of the Access to Work programme      

    Hale, C. StopChanges2AtW/Inclusion London. (2017)

 A Deeply Dehumanising Experience: ME/CFS journeys through the PIP claim process in Scotland 

    Allen, K. & Hale, C. Action for M.E. (2016)

 Close to Collapse: access to social care and advocacy for people with ME/CFS 

     Hale, C. Action for M.E. (2015)

 Fulfilling Potential? ESA and the fate of the Work-Related Activity Group.

    Hale, C. Mind. (2014)








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What are energy-limiting conditions? An introduction to chronic illness at work

What are energy limiting conditions? A guide for employees and their managers is a new resource, produced for Astriid charity. I hope it will be a gamechanger for unlocking conversations about health, disability and work, and lead to more people with chronic illness getting the support they need at work. I've lived with an energy limiting condition (ELC) for decades, but for a long time, I didn’t have the language to describe my needs and ask for adjustments that could have helped me take part in life.  I didn't even know if I was allowed to do so, because I didn't see people like me in representations of disability or in the landscape of disability rights.  The work I did with Chronic Illness Inclusion (CII) taught me that many of us feel the same. The gap between our day-to-day reality and society's understanding of chronic illness as a form of disability is vast. Many people report that this conceptual gap, and the lack of understanding from everyone - from friends