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Showing posts from May, 2017

#MillionsMissing protest London 12.05.17

My address to crowd outside Department of Health, Whitehall Our small gathering here today is just the tip of the iceberg. We are standing in for the Millions Missing worldwide: the millions of people affected by the multi-systemic disease ME aka chronic fatigue syndrome who are too ill to be here today. There are 250K people in the UK with ME and many can’t be here because they've been trapped in bed for years by this most crippling of illnesses, and they’ve been abandoned by our healthcare system and forgotten by the world. The shoes you see here belong to some of those who can’t be here in person but who want you to hear their voice and witness the injustice they face. And they want the Dept of Health to listen and to act on this injustice. The neglect of people with ME by governments and their health authorities is a global scandal. And there are protests like this one happening across the world today. But here in the UK we’ve endured something perhaps even m