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Showing posts from January, 2019

New Year's Resolutions

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It's 2019. I have one year of grant funding left to make a difference for people with Energy Limiting Chronic Illness (ELCI for short).

I'm daunted by the task. Scared I'm not up to the challenge.

By the end of 2019 I want #energyimpairment to be a thing that policy makers understand and take account of when designing strategies to improve the lives of disabled people, in the way they (ought to) do with sensory impairment, learning disability, mobility impairment and people with mental distress. I want people with ELCI to be considered and listened to.

I know that feels like pie in the sky right now. Like all disabled people, we face a political climate of hostility. We bear the brunt of the political choice of austerity. Our hard won rights are being dismantled. Our very survival is under threat. But the additional element of oppression we have to battle with ELCI is disbelief. Disbelief from doctors, health professionals, from employers and government agencies to collea…