The disease is back The one that blows my mind And stops me in my tracks The disease, weak at the knees, that takes my breath away. Don’t get me wrong: it’s been there all along. But we’d reached an understanding, or so I thought. That in return for thirty years of loss I’d be allowed a life of sorts. A charmed existence I’ve led these past 12 months. Sitting, miraculously upright, in a chair, at a desk for four hours a day. Typing thoughts, speaking words, changing the world. And touching grass, as the young people say, almost every day. Treading this blessed earth like I was back from the dead. Skin meeting sun. Foolishly imagining I’d won. By sheer bloody-minded refusal to lie low, I fancied I had had gathered enough strings of energy in my bow to prevail over the tides. But no. It turns out it was churning away in the depths of my cells, a rip tide of nerve signals, gathering force. And now the waves are upon me. Wave after wave of massive attack; the disease is back. The
Research, writing, campaigns and consultancy on disability inclusion. Leading the conversation on energy-limiting conditions